Formerly known as MOFAS: Minnesota Organization on Fetal Alcohol Syndrome

Exciting News
from MOFAS

If you're looking for the Minnesota Organization on Fetal Alcohol Syndrome (MOFAS) you have come to the right place. We have some exciting news about our organization. We have a new name! MOFAS has officially been renamed Proof Alliance. Our mission remains the same: to prevent prenatal alcohol exposure and to improve the quality of life for people living with fetal alcohol spectrum disorders (FASD).

Why PR%F

We now have the proof that prenatal alcohol exposure is a leading cause of brain injury in children. We have the proof that FASD is 100% preventable and people living with an FASD can reach 100% of their potential.

Why Alliance?

We seek to build powerful alliances with people with an FASD, their families, legislators, experts in the field, new partners, and community members to bring awareness, research, and services to this field.

What's Next?

Proof Alliance is rebranding, expanding, and we're moving! We have a new logo, website, and prevention campaign to help change the norms around drinking during pregnancy. And in May 2019 we will be moving to a stand-alone building. Proof Alliance commits to the people of Minnesota and we will continue to develop transformative programs to help Minnesotans impacted by FASD.

FASD Screening and Diagnosis

Printable version of the “FASD Screening and Diagnosis” brochure

Learning the full extent of a child’s disability can help prepare for the challenges ahead and open doors to services and supports needed to be successful.

what is Fetal Alcohol Spectrum Disorders (FASD)?

FASD is an umbrella term describing a range of conditions and disabilities that can occur in an individual whose mother drank alcohol during pregnancy. FASD cannot be cured and the damage to the brain is permanent.

what to watch for

Only trained professionals can make a diagnosis. FASD is often misdiagnosed because many of the characteristics look the same as mental health disorders.

Signs to look for that may indicate the need for an FASD assessment include:

  • Sleeping and sucking problems as a baby
  • Hearing or vision problems
  • Difficulty in school; especially in math
  • Poor coordination and fine motor skills
  • Sensitivity to light, touch, sound
  • Hyperactive behavior
  • Difficulty paying attention
  • Poor memory
  • Poor reasoning and judgment skills

why is diagnosis important?

A diagnosis can change the life of a child with an FASD. An accurate diagnosis can help get the services and support needed to be successful. It can provide greater understanding and acceptance, and it can lead to more realistic expectations and contribute to more positive long-term outcomes.

what to do with the results

Remember, getting a diagnosis is not about “labeling” a child. It is rather an opportunity for your child and family to get the services and supports needed to be successful.

  • Share the diagnosis with your child’s school to assist with the development of an Individualized Education Plan (IEP).
  • Share this information with your child’s health care provider to receive more appropriate medical and mental health services.
  • Contact your county social service office to see what supports and services are available.

See the enclosed checklist  for more information to bring to your doctor visits.

the diagnostic process

Unfortunately, there is not one medical test (like a blood test) to confirm a diagnosis under the FASD umbrella. Instead, here in MN, FASD is diagnosed by a team of professionals assessing four specific areas:

  • Growth issues
  • Brain function and structure
  • Facial features
  • Prenatal alcohol history

Depending on the clinic, the diagnostic process can take up to 8 hours and may include:

  1. History (Clinic Care Coordinator) A comprehensive history of the problem and any evidence of prenatal alcohol exposure is discussed.
  2. Physical Exam (Medical Provider) Measurements of the head, face and growth are taken along with a complete physical exam.
  3. Neurodevelopmental Assessment (Psychologist, Speech Therapist and Occupational Therapist) Comprehensive testing is done to evaluate 10 different brain functions including memory, executive functioning and motor skills.
  4. Diagnosis (Diagnostic Team) All assessments are reviewed by the diagnostic team and evaluated to see if they meet the criteria for a diagnosis under the FASD umbrella.
  5. Evaluation Report (Diagnostic Team) A summary of the findings is prepared along with any specific recommendations for follow up support and treatment. Information about MOFAS and upcoming Hand in Hand Series are distributed.

where to get diagnosed

If you or someone you know suspects prenatal alcohol exposure, it is important to act early, reach out and pursue an in-depth evaluation of your child. In Minnesota, you do not need a referral from primary care to make an appointment at an FASD Diagnostic Clinic, but be sure to verify coverage through your health insurance carrier.

For a clinic close to home, search the MOFAS online Resource Directory. Go to www.proofalliance.org and click on MOFAS Support and Resources.

MOFAS diagnostic clinic

The MOFAS Diagnostic Clinic is located at 2233 University Avenue West, Suite 395 in St. Paul, MN. Appointments are available Monday – Friday, 8:00 am – 4:00 pm for children primarily between the ages of 2 – 17.

To schedule an appointment or for more information on diagnosis, please contact the Clinic Coordinator at 651-917-2370.

how to contact us

mail:
Minnesota Organization on Fetal Alcohol Syndrome
2233 University Avenue West, Suite 395
Saint Paul, MN 55114

phone:
metro: 651-917-2370
toll free: 1-866-90-MOFAS (66327)
fax: 651-917-2405

online:
mofas.org
info@mofas.org
facebook.com/mofas.org
© 2010 MOFAS
Protected by U.S. and International Copyright Laws. All Rights Reserved

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