If you're looking for the Minnesota Organization on Fetal Alcohol Syndrome (MOFAS) you have come to the right place. We have some exciting news about our organization. We have a new name! MOFAS has officially been renamed Proof Alliance. Our mission remains the same: to prevent prenatal alcohol exposure and to improve the quality of life for people living with fetal alcohol spectrum disorders (FASD).
We now have the proof that prenatal alcohol exposure is a leading cause of brain injury in children. We have the proof that FASD is 100% preventable and people living with an FASD can reach 100% of their potential.
We seek to build powerful alliances with people with an FASD, their families, legislators, experts in the field, new partners, and community members to bring awareness, research, and services to this field.
Proof Alliance is rebranding, expanding, and we're moving! We have a new logo, website, and prevention campaign to help change the norms around drinking during pregnancy. And in May 2019 we will be moving to a stand-alone building. Proof Alliance commits to the people of Minnesota and we will continue to develop transformative programs to help Minnesotans impacted by FASD.
If you are a student with an FASD and work with a paraprofessional at school, you know how important it is for that staff person to understand your disability. “Working with paras who understood my challenges—and how to help me learn made a huge difference in my school day and my year,” shared Alex M., MOFAS volunteer and student at Normandale Community College.
Alex and a strong team of advocates from MOFAS and other disability organizations from across the state helped to pass legislation last year that requires Minnesota school districts to provide disability training before or at the beginning of employment for paraprofessionals who give direct support to students with disabilities. The training, which must be disability-specific, ensures that paraprofessionals have enough knowledge to effectively support the student living with an FASD.
The training must include understanding the disability, the individual needs of each student according to their disability, and how the disability affects the student’s education and behavior. In addition, each district must have a process for every paraprofessional to have ongoing direction from a licensed teacher or supervision by a school nurse when appropriate.
MOFAS is pleased to already be working with many schools, unions, educators, and paraprofessionals to deliver this training across the state.
Parents and caregivers should ask their child’s Individualized Education Program (IEP) team about the specific training their child’s paraprofessional has received or needs. For more information on training for paraprofessionals contact Shauna Feine, Training Coordinator, at firstname.lastname@example.org.
This year MOFAS is proposing new legislation to require FASD training for licensed foster parents and respite care providers. Join us for FASD Day at the Capitol to make your voice heard on Tuesday, April 12, 2016. Help other people with an FASD like Alex. Become an FASD advocate. Sign up today.