Formerly known as MOFAS: Minnesota Organization on Fetal Alcohol Syndrome

Exciting News
from MOFAS

If you're looking for the Minnesota Organization on Fetal Alcohol Syndrome (MOFAS) you have come to the right place. We have some exciting news about our organization. We have a new name! MOFAS has officially been renamed Proof Alliance. Our mission remains the same: to prevent prenatal alcohol exposure and to improve the quality of life for people living with fetal alcohol spectrum disorders (FASD).

Why PR%F

We now have the proof that prenatal alcohol exposure is a leading cause of brain injury in children. We have the proof that FASD is 100% preventable and people living with an FASD can reach 100% of their potential.

Why Alliance?

We seek to build powerful alliances with people with an FASD, their families, legislators, experts in the field, new partners, and community members to bring awareness, research, and services to this field.

What's Next?

Proof Alliance is rebranding, expanding, and we're moving! We have a new logo, website, and prevention campaign to help change the norms around drinking during pregnancy. And in May 2019 we will be moving to a stand-alone building. Proof Alliance commits to the people of Minnesota and we will continue to develop transformative programs to help Minnesotans impacted by FASD.

FASD Community to Rally for FASD Prevention and Support Services

2019 FASD Day at the Capitol

FOR IMMEDIATE RELEASE

Media Contact: Sara Messelt, Executive Director sara.messelt@proofalliance.org O: 651-917-2370 C: 612-618-4156

Saint Paul, Minn. – March 19, 2019

The fetal alcohol spectrum disorders (FASD) community advocates will gather from all parts of the state for FASD Day at the Capitol this Thursday, March 21.

A national study states that up to 1 in 20 children have an FASD1—that is more common than autism. FASD is a range of effects that can occur when a developing fetus is prenatally exposed to alcohol. FASD can include physical disabilities as well as difficulties with behavior and learning. These conditions are lifelong and irreversible, and there is no cure. An estimated 1 in 10 pregnancies are exposed to alcohol2 which is why legislation to support healthy pregnancies and the FASD community is so important.

The FASD Day at the Capitol is organized and hosted by Proof Alliance, formerly MOFAS. Proof Alliance will advance two legislative priorities this year, including:

Amend the Brain Injury Waiver (HF 929/SF 1429)

Expand the definition of “brain injury” to include congenital brain injuries such as those caused by prenatal alcohol exposure. Brain injury can be the most challenging part of the FASD diagnosis, too often leading to school failure or juvenile/ criminal justice involvement3. The Brain Injury (BI) waiver could help people with an FASD qualify for more intensive, brain injury-focused services for which they are currently ineligible.

Support Mothers in Recovery (HF 928/SF 1530)

With ongoing support, mothers with substance use disorders (SUD) can maintain sobriety and lead healthy lives with their children. Proof Alliance is advocating for the Department of Human Services (DHS) funding to provide this necessary support. Women in this program receive long-term community-based services. The program works by addressing root problems for the most vulnerable families and connecting them with existing community resources. Participants in the program who are pregnant consistently have toxic free pregnancies, with 92% of babies born testing negative for substance exposure4. We are advocating for $750,000 additional funding to serve more families across the state.

A legislative priorities update and advocacy training will take place from 9:00 – 11:15 a.m. in the Fellowship Hall of Christ Lutheran Church on Capitol Hill at 105 University Ave. W., St Paul, MN 55155. First Lady Gwen Walz plans to speak at 9:30 a.m., followed by Ramsey County Commissioner Mary Jo McGuire as well as six legislators who will address the group throughout the morning: Senator Jim Abeler (R), Senator Michelle Benson (R), Senator Melisa Franzen (D), Senator Jerry Relph (R), Representative Ruth Richardson (D), and Representative Nick Zerwas (R). [

About Proof Alliance

Proof Alliance has been the hub of hope for families affected by fetal alcohol spectrum disorders (FASD), guiding and supporting families through the FASD journey since 1998. Proof Alliance is the leading voice and resource on FASD statewide, standing up for the rights of the FASD community, providing education and training so FASD is better understood and working to ensure that all people know that there is no safe level of alcohol during pregnancy. For more information contact Proof Alliance at 651-917-2370 or visit www.proofalliance.org.

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Sources:

  1. May et al. (2018) Prevalence of Fetal Alcohol Spectrum Disorders in 4 US Communities, JAMA, Volume 319 (5): 474-482.
  2. Centers for Disease Control and Prevention. One in 10 Pregnant Women in the United States Reports Drinking Alcohol. https://www.cdc.gov/media/releases/2015/p0924-pregnant-alcohol.html
  3. Streissguth AP, Bookstein FL, Barr HM, et al. Risk factors for adverse life outcomes in fetal alcohol syndrome and fetal alcohol effects. Journal of Developmental and Behavioral Pediatrics. 2004;25(4):228-238.
  4. Grantee reports to Proof Alliance, 2014-2018.

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