Formerly known as MOFAS: Minnesota Organization on Fetal Alcohol Syndrome

Exciting News
from MOFAS

If you're looking for the Minnesota Organization on Fetal Alcohol Syndrome (MOFAS) you have come to the right place. We have some exciting news about our organization. We have a new name! MOFAS has officially been renamed Proof Alliance. Our mission remains the same: to prevent prenatal alcohol exposure and to improve the quality of life for people living with fetal alcohol spectrum disorders (FASD).

Why PR%F

We now have the proof that prenatal alcohol exposure is a leading cause of brain injury in children. We have the proof that FASD is 100% preventable and people living with an FASD can reach 100% of their potential.

Why Alliance?

We seek to build powerful alliances with people with an FASD, their families, legislators, experts in the field, new partners, and community members to bring awareness, research, and services to this field.

What's Next?

Proof Alliance is rebranding, expanding, and we're moving! We have a new logo, website, and prevention campaign to help change the norms around drinking during pregnancy. And in May 2019 we will be moving to a stand-alone building. Proof Alliance commits to the people of Minnesota and we will continue to develop transformative programs to help Minnesotans impacted by FASD.

FASD in Adulthood

FASD in Adulthood PDF

FASD in adulthood

About FASD

Prenatal alcohol exposure (or drinking alcohol during pregnancy) can cause fetal alcohol spectrum disorders (FASD). FASD refers to a range of birth defects including brain injury and physical, behavioral, and intellectual disabilities.1 These conditions are lifelong and irreversible. Because FASD impacts people for their entire lives, it is important that information, resources, and support are available to adults who have an FASD.

Getting an FASD Assessment

The only way to determine if you have a fetal alcohol spectrum disorder (FASD) is to receive an FASD assessment. Only trained professionals can make an FASD diagnosis. FASD is often misdiagnosed because many of the characteristics look the same as mental health disorders.2 It can also be harder to get diagnosed on the fetal alcohol spectrum as an adult, because the characteristics associated with FASD can present differently; for example, the physical features related to FASD may change and growth may normalize, complicating a diagnosis.3

Signs that may indicate the need for an FASD assessment include:

  • History of prenatal alcohol exposure4
  • Received many diagnoses such as ADHD, autism, reactive attachment disorder, bipolar disorder, depression, anxiety, etc.5,6
  • Easily distracted, hyperactive, inattentive, impulsive7
  • Consistently displays extreme behavior (aggression, emotional instability)8
  • Been involved with the criminal justice system9
  • Has trouble remembering things10
  • Makes the same mistakes repeatedly11
  • Displays difficulties in holding a job12
  • Raised in foster care or adopted2
  • History of chemical dependency13

FASD Clinics

If you think you might have an FASD and want to learn more about the FASD assessment process, there are clinics across the country that can help. In Minnesota, some of the clinics that provide FASD assessments for adults are:

Canvas Health
7066 Stillwater Blvd. N.,
Oakdale, MN 55128
(651) 251-5059
www.canvashealth.org

Bluestem
124 Elton Hills Ln. NW,
Rochester, MN 55901
(507) 282-1009
www.bluestemcenter.com

Treehouse Psychology
333 Main St. N., Suite 205, Stillwater, MN 55082
(651) 200-3788
www.treehousepsychology.com

Services for Adults with an FASD

There are supports and services that can help adults with FASD lead productive, successful, and happy lives. At Proof Alliance our staff can provide one-on-one support to help you navigate services. Call our office at 651-917-2370 for more information. Some of the things we can help you with include:

  • Employment services
  • Housing
  • Waivers and other sources of financial support
  • Support groups
  • Social connections

Online Help

There are a variety of online resources that are available.

Questions?

If you want more information, please contact Proof Alliance at
651-917-2370 or visit our website at www.proofalliance.org.

Sources:

  1. Noor S, Milligan ED. Lifelong Impacts of Moderate Prenatal Alcohol Exposure on Neuroimmune Function. Frontiers in Immunology. 2018.
  2. Chasnoff IJ, Wells AM, King L. Misdiagnosis and Missed Diagnoses in Foster and Adopted Children with Prenatal Alcohol Exposure. Pediatrics. 2015; 135(2): 264-270.
  3. National Organization on Fetal Alcohol Syndrome. Diagnosis in adulthood. https://www.nofas.org/diagnosis-in-adulthood/
  4. May PA et al. Maternal alcohol consumption producing fetal alcohol spectrum disorders (FASD): quantity, frequency, and timing of drinking. Drug and Alcohol Dependence. 2013; 133(2): 502-512.
  5. Goh PK, et al. A Decision Tree to Identify Children Affected by Prenatal Alcohol Exposure. Journal of Pediatrics. 2016;177:121-127.
  6. Moore EM, Riley EP. What happens when children with fetal alcohol spectrum disorders become adults? Curr Dev Disord Rep. 2015;2(3):219-227.
  7. Young S, Absoud M, Blackburn C, Branney P, Colley B, Farrag E, & … Mukherjee R. Guidelines for identification and treatment of individuals with attention deficit/ hyperactivity disorder and associated fetal alcohol spectrum disorders based upon expert consensus. BMC Psychiatry. 2016; 16(1):324.
  8. Domeij H, et al. Experiences of Living with Fetal Alcohol Spectrum Disorders: A Systematic Review and Synthesis of Qualitative Data. Developmental Medicine & Child Neurology. 2018;60(8):741-752.
  9. Flannigan K, Pei J, Rasmussen C, Potts S, O’Riordan T. A Unique Response to Offenders with Fetal Alcohol Spectrum Disorder: Perceptions of the Alexis FASD Justice Program. Canadian Journal of Criminology & Criminal Justice. 2018;60(1):1-33.
  10. Masotti P, Longstaffe S, Gammon H, Isbister J, Maxwell B, Hanlon-Dearman A. Integrating care for individuals with FASD: results from a multi-stakeholder symposium. BMC Health Services Research. 2015;15(1):1-12.
  11. Center for Substance Abuse Prevention (US). Addressing Fetal Alcohol Spectrum Disorders (FASD). Rockville (MD): Substance Abuse and Mental Health Services Administration (US); 2014. (Treatment Improvement Protocol (TIP) Series, No. 58.) Chapter 2, Addressing FASD in Treatment. Available from: https://www.ncbi.nlm.nih.gov/books/NBK344242/
  12. Rutman D, Van Bibber M. Parenting with Fetal Alcohol Spectrum Disorder. International Journal of Mental Health & Addiction. 2010;8(2):351-361.
  13. Millar JA,Thompson J, Schwab D, et al. Educating students with FASD: linking policy, research and practice. Journal of Research in Special Educational Needs. 2017;17(1):3-17.

Last updated: May 2019

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