Formerly known as MOFAS: Minnesota Organization on Fetal Alcohol Syndrome

Exciting News
from MOFAS

If you're looking for the Minnesota Organization on Fetal Alcohol Syndrome (MOFAS) you have come to the right place. We have some exciting news about our organization. We have a new name! MOFAS has officially been renamed Proof Alliance. Our mission remains the same: to prevent prenatal alcohol exposure and to improve the quality of life for people living with fetal alcohol spectrum disorders (FASD).

Why PR%F

We now have the proof that prenatal alcohol exposure is a leading cause of brain injury in children. We have the proof that FASD is 100% preventable and people living with an FASD can reach 100% of their potential.

Why Alliance?

We seek to build powerful alliances with people with an FASD, their families, legislators, experts in the field, new partners, and community members to bring awareness, research, and services to this field.

What's Next?

Proof Alliance is rebranding, expanding, and we're moving! We have a new logo, website, and prevention campaign to help change the norms around drinking during pregnancy. And in May 2019 we will be moving to a stand-alone building. Proof Alliance commits to the people of Minnesota and we will continue to develop transformative programs to help Minnesotans impacted by FASD.

Waiver Programs in Minnesota

Waiver Programs in Minnesota PDF

Waiver programs in MN

Waiver programs fund home and community-based supports and services to help people with disabilities live at home or in the community, rather than in an institution. Minnesota waiver programs are a part of Medical Assistance (MA, or Medicaid in Minnesota). Waivers may help cover services not covered by other health insurance. You must qualify for a MA to qualify for a waiver.

Waiver Programs in Minnesota

  • CADI: Community Access for Disability Inclusion (CADI) Waiver
  • BI: Brain Injury (BI) Waiver
  • CAC: Community Alternative Care (CAC) Waiver
  • DD: Developmental Disabilities (DD) Waiver
  • EW & AC: Elderly Waiver & Alternative Care Program (Serves people 65+)

How families impacted by FASD have used waivers

  • FASD training /expenses for parent and caregivers
  • Horse therapy
  • Social skills classes
  • Safes and other safety-related home improvements
  • Home cleaning
  • Summer overnight camp/day camp (respite)
  • Parent pay
  • FASD conferences or other mental health/parenting conferences
  • Parent control software for phones
  • FASD consultant/advocate to help at IEP meetings

What is parent pay?

Parents and caregivers can receive pay from waiver funds to provide the services a waiver can cover. For example, many caregivers of someone with an FASD receive parent pay to provide Personal Care Assistance (PCA) services to their child. Parent pay is available for any type of waiver. This is a popular option for families impacted by FASD, partly because so few providers understand FASD.

What families impacted by FASD need to know about waivers

People with an FASD most often qualify for one of two types of waivers:

Community Access for Disability Inclusion (CADI) Waiver

For people with disabilities who need nursing facility level of care.

Eligibility Requirements

  • Eligible for Medical Assistance (MA).
  • Certified disabled by State Medical Review Team (SMRT) or by the Social Security Administration (SSA).
  • Undergo a MnCHOICES assessment from your county human services agency. Find your county at http://bit.ly/CountyDirectory. (MnCHOICES looks at a person’s current situation to decide which services and programs are a good fit.)
  • Under the age of 65.
  • In need of nursing facility level of care determined by case manager or service coordinator.
  • Has a need for supports and services greater than what is available through the MA state plan.

Examples of CADI Waiver Coverage

  • Respite care
  • Independent living skills (ILS)
  • Residential care services
  • Transitional services
  • 24-hour emergency assistance
  • Foster care
  • Case management
  • Specialized supplies and equipment
  • Transportation
  • (More information at http://bit.ly/CADIwaiver)

Developmental Disabilities (DD) Waiver

For people with a developmental disability who need intermediate facility level of care.

Eligibility Requirements

  • Eligible for Medical Assistance (MA)
  • A documented diagnosis of a developmental disability diagnosed before age 22.
  • Undergo a MnCHOICES assessment through your county human services agency. This assessment looks at a person’s current situation to decide which services and programs are a good fit.
  • Has needs for supports and services greater than what is available through the MA state plan.
  • Made an informed choice to receive waiver services instead of receiving ICF/DD services.

Examples of DD Waiver Coverage

  • Respite care
  • Residential care services
  • Transitional services
  • 24-hour emergency assistance
  • Case management
  • Extended personal care assistance
  • Caregiver living expenses
  • Transportation
  • (More information at: http://bit.ly/DDwaivers)

How to Obtain a Waiver

Contact your local county human services agency or tribe. Ask to undergo a MnCHOICES assessment, which is designed to evaluate what long-term services and supports the person may need. The assessment determines whether a person is eligible for Personal Care Assistance (PCA) funding, a Consumer Support Grant (CSG), and Family Support Grant (FSG), Case Management for People with Developmental Disabilities, and several other programs relevant to families impacted by FASD.

If you do not qualify for a waiver, you may still qualify for one of these other programs, such as or Personal Care Assistance (PCA) funding. Visit the Proof Alliance FASD Service Handboook (http://bit.ly/FASDservicehandbook), go to the Minnesota Department of Human Services website (https://mn.gov/dhs), or contact Proof Alliance at 651-917-2730 for more information.

Choose how to manage your waiver

A person with a waiver can manage their waiver in one of two ways:

  1. Traditional Waiver: The person or their caregiver works with a case manager to pay for needed services with waiver funds. The case manager decides how much the waiver will pay and which services it will cover.
  2. Consumer Directed Community Supports (CDCS): The person or their caregiver manages the waiver budget. This option comes with slightly less funding but allows for more control and flexibility regarding the waiver budget. Read more at http://bit.ly/waiverCDCS.

Waiver Tips from Families Impacted by FASD

  • Keep clear documentation of the disability. This will be needed when the SMRT or SSA is deciding whether you or your child has a qualifying disability.
  • Organize your medical records. Keep an up-to-date summary sheet of all medical appointments. File records in chronological order.
  • Join the Proof Alliance Virtual Family Center on Facebook or an FASD parent and caregiver support group to discuss waiver issues with others who have had experience with waivers.
  • Stay on top of paperwork to avoid accidental loss of a waiver.
  • Maintain eligibility for MA or MA for Employed Persons with Disabilities (MA-EPD), otherwise, the waiver will be lost. Changes, like an increase in income or assets, can cause someone to lose both MA eligibility and their waiver.

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