Formerly known as MOFAS: Minnesota Organization on Fetal Alcohol Syndrome

Exciting News
from MOFAS

If you're looking for the Minnesota Organization on Fetal Alcohol Syndrome (MOFAS) you have come to the right place. We have some exciting news about our organization. We have a new name! MOFAS has officially been renamed Proof Alliance. Our mission remains the same: to prevent prenatal alcohol exposure and to improve the quality of life for people living with fetal alcohol spectrum disorders (FASD).

Why PR%F

We now have the proof that prenatal alcohol exposure is a leading cause of brain injury in children. We have the proof that FASD is 100% preventable and people living with an FASD can reach 100% of their potential.

Why Alliance?

We seek to build powerful alliances with people with an FASD, their families, legislators, experts in the field, new partners, and community members to bring awareness, research, and services to this field.

What's Next?

Proof Alliance is rebranding, expanding, and we're moving! We have a new logo, website, and prevention campaign to help change the norms around drinking during pregnancy. And in May 2019 we will be moving to a stand-alone building. Proof Alliance commits to the people of Minnesota and we will continue to develop transformative programs to help Minnesotans impacted by FASD.

Waivers

What?

For many people with an FASD, waivers open the door to needed services not covered by other health insurance. Waivers pay for services to help people with disabilities live in the community instead of in an institution.

The services for which a waiver can pay depend on the type of waiver. A few common examples include extended Personal Care Assistance (PCA) services, environmental adaptations such as fencing in the yard, supported employment services, and respite care. Parents and caregivers can receive pay from waiver funds to provide these services (read more about parent pay)—this is a popular option for families impacted by FASD because so few providers understand FASD well.

In Minnesota, people with an FASD most often qualify for one of two types of waivers:

  1. Community Access for Disability Inclusion (CADI) Waiver – Read more.
  2. Developmental Disabilities (DD) Waiver – Read more.

Minnesota has three other types of waivers as well. Read more at the Minnesota Department of Human Services website.

Waivers can work in one of two ways:

  1. Traditional Waiver: The person or their caregiver works with a case manager to pay for needed services with waiver funds. The case manager decides how much the waiver will pay and which services it will cover.
  2. Consumer Directed Community Supports (CDCS): The person or their caregiver manages the waiver budget. This option allows for more control and flexibility regarding the waiver budget. Read more.

Who?

To have a waiver, a person must:

  • Qualify for disability-based Medical Assistance (MA) or MA for Employed Persons with Disabilities (MA-EPD).
  • Be certified disabled by the State Medical Review Team (SMRT) or the Social Security Administration (SSA). For DD waivers only, a documented diagnosis of a developmental disability diagnosed before age 22 is enough.
  • Undergo a MnCHOICES assessment from your county human services agency. MnCHOICES looks at a person’s current situation to decide which services and programs are a good fit.
  • Make an informed choice of services in the community instead of institutional care.

How?

Waiver tips from families impacted by FASD:

  • Keep clear documentation of the disability. This will be needed when the SMRT or SSA is deciding whether you or your child has a qualifying disability.
  • Organize your medical records. Keep an up-to-date summary sheet of all medical appointments. File records in chronological order.
  • Join the MOFAS Virtual Family Center or an FASD parent or caregiver support group to discuss waiver issues with others who have had experience with waivers.
  • Stay on top of paperwork to avoid accidental loss of a waiver.
  • Maintain eligibility for MA or MA-EPD; otherwise the waiver will be lost. Changes, like an increase in income or assets, can cause someone to lose both MA eligibility and their waiver.

Where?

Apply for a waiver through your local county human services agency or tribe. Note that, if you do not qualify for a waiver, you may still qualify for a Family Support Grant (FSG). The grants are much smaller than waiver budgets but can still be helpful. Read more about FSGs.

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